Friday, December 31, 2010

My journey continues...

I remembered how I spent my new year last year. Desmond bought 6 big balloons with "2010" printed on them, to my ward and we watched the fireworks light up the sky, using a mini potable tv. At that time, I still cant talk or walk and was still badly infected. But I recalled i prayed very hard for a better and healthier 2010.

Another year has passed and so many things had changed in my life.

In Feb, after 6 months in ICU, hooked on the ventilator, doctors allowed the removal the trachaestomy tube which had helped me to breathe for half a year. The was the first indication that any recovery was possible for the very fragile and delirious Lilian. My resting heartbeat was still more than 130 per min.

In April, with intensive speech and physiotherapy, I was allowed my my first mouth of water. Subsequently, my first soft diet and my first murmur. I have not heard myself for very long and the nurses and doctor has never heard me speak.

After moving to the normal ward on 3rd May, I stood for the first time using the AJO. It was extremely painful to even straighten my knee, let alone walking. I stood for 2 secs during the first attempt.

In June, I started to walk slowly with a walking frame. This slowly evolved into a robotic walk which barely looks elegant. Every morning, afternoon and evening, I will have physiotherapy and I was very tired every day.

On 7th July, I was transferred to St Luke's Hospital and met many elderly friends during my short stay there. I was able to make myself to the toilet and shower. I started to learn how to climb stairs and carry some load while walking. I begin to make plans for returning home.

On 4th Aug, 3 days before I was discharged, my sister told me that Mama may be dying from colon cancer relapse. I cried the whole night and the following night too. I thought that she had been healthy all along and I hated myself for not being there for her when she needed me.

On 17th Sept, Mama passed away peacefully, with everyone around at her death bed. I begin my new life, with Papa, in a home which missed Mama's love and presence. I started going for chapel lessons with Desmond and Papa, and it had enriched my life every since.

On 27th Oct, I went for a day surgery to close my trachaestomy hole. It seemed to be the best decision I made this year as I never enjoyed better fresh air every since. Scars and wounds now ravaged my whole body but I don't care about them now.

I spent most of my time rehabilitating and learning new things during the last 3 months of this year. I researched on home buying, spent a considerable amount of time on the spa saga, made scrapbooks for friends, and also spend quality time with Papa, sister, Desmond and Desmond's mum. I rescheduled and made plans for my wedding in Oct 2011. I bid goodbye to my twenty-something friends and joined the exclusive 30's club on 6th Dec. I can now manage walking 1-2 hours in the shopping centre before stopping for a rest.

It had been an eventful year, a year which changed my life forever. I lost some friends and made new ones. I start learning to take things slowly and cherish the people around me. And now I am going to start work soon, after 17 months of break.

I hope I am ready to go, not run. As I continue with my journey, I thank God and my dear family and friends for being there for me when I needed them the most. And I know Mama is shining down on me from heaven.

Wish that everyone will be in the pink of health. I love all of you.

A Letter to Lee Kok Heng

Dear Kok Heng,

I read about you in an article in The New Paper published on 11th Oct 2009. I don't know you but I hope that you are doing fine now.

I was surprised to hear of your plight as, we are in the same boat. We were the first two patients in Singapore to have survived the H1N1 viral pneumonia, with the help of the ECMO machine. I see that you you were hooked on the machine on 11th Aug, 3 days after I was hooked on, on 8th Aug. We both had high fever above 39degC, visited GPs and hospitals in July 2009, but were told to go home, without being screened for H1N1, or prescribed with Tamiflu.

I did not know from whom I got the virus from, do you? I did not go overseas or come in contact with any sick people. I was also in the low risk group and had no previous medical or health history. Before I was ill, I enjoyed long distance running and all kinds of sports and I ate healthily.

Similar to you, i walked into the hospital in early Aug 2009, relatively healthy and thinking that I would be discharged within a few days. But within hours, I was close to dying.

I read with emotions on how you felt during the ECMO treatment. Because I had exactly the same feelings. I was sedated, hallucinating, and cannot differential from what is real and what is not. It felt like my soul left me and came back again. I had strings of nightmares and dreamt that I was held captive in a faraway land by terrorists. It was worst than hell.

I was glad to know that you stayed in SGH for less than a month. I was not so lucky. I had heart failure, followed by multiple organ failures, after which i caught bouts and bouts of pneumonia. I was on ventilator for many months and lost the power to speak, walk or even cough. I also had to go though 7-8 open heart surgery within a period of 2 months.

Everything is over now, thank God. And I was lucky to have survived, and was discharged from NUH after 11 months.

Now, back at home, I suffer from chronic heart failure and cannot engage in physical activities like before. I am doing rehabilitation everyday and hope that one day i will return to one of my favourite love, running.

If you read this, can you pls contact me. I would really love to meet you. Wish you good health for the new year,

God bless you,
Qiaohe